ServiceNHS Long-Term PlanNHS service framework

Skin-cancer survivorship clinic

Cancer survivorship ยท post-treatment follow-up clinic ยท post-cancer rehabilitation

Skin-cancer survivorship clinics provide structured follow-up, recurrence surveillance, secondary-prevention counselling, late-effect management and psychosocial support for patients post-curative treatment. The NHS Long-Term Plan (2019) commits to personalised stratified follow-up pathways with universal access to a holistic needs assessment. NICE NG14 and BAD cSCC/BCC guidance define risk-stratified follow-up schedules. UK structures include nurse-led follow-up, telephone / virtual review and patient-initiated follow-up (PIFU) for low-risk disease.

CurrentLast reviewed 16 May 2026

Principles

  • NHS Long-Term Plan commits to:
    • Stratified follow-up pathways.
    • Holistic Needs Assessment (HNA) at end-of-treatment and annually.
    • Treatment Summary shared with primary care.
    • Cancer Care Review (CCR) by GP.
    • Personalised follow-up planning (Macmillan Recovery Package).
  • Stratified by recurrence risk:
    • Low-risk: PIFU (Patient-Initiated Follow-Up) or annual review.
    • Moderate-risk: structured nurse-led follow-up.
    • High-risk: consultant-led + imaging surveillance.

Components of survivorship clinic

  • Recurrence surveillance:
    • Clinical examination โ€” primary site, regional nodes, full skin.
    • Imaging per stage and BAD / NICE guidelines.
    • Photography / mole-mapping for high-risk patients.
  • Secondary prevention:
    • Photoprotection counselling โ€” sunscreen, clothing, UV avoidance.
    • Self-skin examination education.
    • Acitretin chemoprophylaxis in transplant / multiple cSCC.
    • Vitamin D status assessment.
    • Counsel about increased second-primary melanoma risk, commonly around 5-10% over longer follow-up but higher in familial, multiple-primary, high-naevus-burden or other high-risk cohorts; keratinocyte cancer risk is also increased.
  • Late-effect management:
    • Scar care, lymphoedema surveillance.
    • Cancer-related fatigue.
    • ICI long-term sequelae (thyroid, hypophysitis, vitiligo).
    • Radiation late effects.
    • Cognitive and mood sequelae.
  • Psychosocial:
    • HADS or PHQ-9 screening.
    • Sexual health, fertility.
    • Body image, return-to-work, financial.
    • Macmillan / Maggie's / charity signposting.
  • Holistic Needs Assessment (HNA): structured proforma covering physical, emotional, practical, spiritual, family.
  • Care plan: agreed personalised summary shared with patient + GP.

UK risk-stratified follow-up schedules

Note: Source-checked against NICE NG14 melanoma, BAD cSCC and BAD BCC guidance (16 May 2026). Always verify against current local protocol.

  • Melanoma (NICE NG14):
    • Stage IA: follow-up for ~1 year (about 2 visits), then discharge with safety-netting; no routine surveillance imaging (per NICE NG14, 2022 update).
    • Stage IB-IIA: every 3-6 months for 3 years; 6-12 months years 4-5.
    • Stage IIB-IIIA: every 3 months for 3 years; 6 months years 4-5; imaging surveillance.
    • Stage IIIB-IV: tailored intensive surveillance with imaging.
  • cSCC (BAD 2020):
    • Low-risk: PIFU or annual review for 2 years.
    • High-risk: every 3-6 months for 2 years; annual to 5 years.
  • BCC (BAD 2021):
    • Low-risk: discharge to GP / PIFU after histological confirmation.
    • High-risk / recurrent / Mohs: nurse-led 12-monthly for 3-5 years.

Governance and quality

  • National Cancer Audit and Analysis (NCAA): outcome reporting.
  • Patient-Reported Outcome Measures (PROMs): EORTC QLQ-C30, FACT-Melanoma, EQ-5D-5L.
  • Patient-Reported Experience Measures (PREMs): National Cancer Patient Experience Survey.
  • Cancer Quality of Life Survey (NHSE).
  • Macmillan Living With and Beyond Cancer (LWBC) framework.
  • Skin-cancer-specific PROMs / surveys.
  • Regular audit of recurrence detection rate, time-to-detection, PIFU activation rate.

References

  1. NHS England. NHS Long Term Plan: cancer. London: NHSE; 2019.
  2. NICE NG14. Melanoma: assessment and management. London: NICE; 2015 (last updated 27 July 2022).
  3. Keohane SG et al. British Association of Dermatologists guidelines for the management of people with cutaneous squamous cell carcinoma 2020. Br J Dermatol. 2021;184(3):401-414.
  4. British Association of Dermatologists. UK guidelines for the management of basal cell carcinoma 2021. Br J Dermatol. 2021;185:899-920.
  5. Macmillan Cancer Support. Recovery package and personalised care. London: Macmillan; 2024.
  6. NICE NG12. Suspected cancer: recognition and referral. London: NICE; 2015 (last updated 15 April 2026).

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